Congenital Erythropoietic Porphyria
“The Pakistan Porphyria Foundation helped me in find an exact diagnosis of my disease. By interacting with other APF members, I developed friendships with many people living with different skin conditions around the world and I am no more feeling alone.”
MISSION
Our mission is to improve the health and well-being of all individuals and families impacted by Porphyria. We have maintained a relentless focus on education, advocacy, support services and research for the prevention, treatment and cure of the Porphyrias.
Our Porphyria Heroes
Khawaja Muhammad Asif
I work as a Computer Lecturer for three years in a Gov’t college. There are 6 hrs. duty. On my return from college, I have to walk an hour in the sunlight to come home. I never took any medications. I just use Sun Blocks which are not much effective.
Muhammad Ahsan
i am working as a govt servant its far from my home but in Islamabad weather i enjoy here.